Facilitating fair research - National Research Data Infrastructure (NFDI)

In the interview, Prof. Dr. Ulrich Sax (Head of the scientific working group Translational Collaborative Research at the Institute of Medical Informatics) emphasizes the advantages of the GDPR (General Data Protection Regulation), especially for the legally compliant processing of personal health data in research. He sees the GDPR as a relief and welcomes the rethinking among lawyers, which opens up new possibilities for data use. Prof. Sax praises the draft of the Health Data Usage Act and underlines the importance of metadata and standardized data formats for the reusability of research data.

The article also discusses the challenges of reusability and discoverability of research data and highlights the role of the National Research Data Infrastructure (NFDI). Despite growing awareness of the importance of data sharing, there are still many obstacles, particularly in terms of data protection and the standardization of data formats. Subject-specific consortia within the NFDI are working on solutions to make research results more accessible and ensure reproducibility. The article emphasizes the need for international standards and subject-specific best practices.

The complete article can be found on the LABORJOURNAL website.