International Winterschool DATAETHICS with contributions from Prof. Hauschild and Prof. Sax

Ethical and regulatory challenges in the era of Open Science – Data sharing in the Life Sciences & Health domain

Prof. Dr. Anne-Christin Hauschild and Prof. Dr. Ulrich Sax were invited to contribute their expertise and hands on experience in this context. The international Winterschool takes place for the third time, 2023 at the Leiden University Medical Center with more than 30  BSc, MSc and PhD students from the fields of medicine, biomedicine and life sciences from the DATAETHICS Partner Universities. UMG is one of the nine partners https://www.dataethics-eurolife.eu/partners/.

The potential of big data coupled with the big strive for open science opens up regulatory and ethical challenges for the development of EU health research. Due to the increasing importance of the exploitation of data in health domain (for example – but not only – in the case of a pandemic) and to exploit the full potential of health data, the establishment of the European Health Data Space is being discussed and the notion of Open Science and Data-sharing acquires new dimensions.

This 5-day course offered a unique opportunity to interact during lectures from leading and established cross-disciplinary experts in data curation and privacy, data use, ethics, biomedicine, and related fields. Through a matrix of lectures, interactive sessions and small group assignments, a flexible environment was created allowing for students to acquire new knowledge outlined in a dilemma story. This approach furthers the ability of students to apply newly-gained knowledge in true-to-life scenarios. The course also offers ample opportunities for networking with peers and thematic experts from different leading European medical institutions, as well as external speakers from academia and industry.

Event website: https://www.dataethics-eurolife.eu/events/dataethics-winter-school-2023/#:~:text=Some%20of%20the%20topics%20covered,Data%3A%20ethical%20and%20legal%20considerations

Link to the authors ORCiD:

Prof. Dr. Anne-Christin Hauschild https://orcid.org/0000-0002-7499-4373

Prof. Dr. Ulrich Sax https://orcid.org/0000-0002-8188-3495

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